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Old 10-05-2011, 02:06 PM   #6
ktinkel
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Location: In Connecticut, on the Housatonic River near its mouth at Long Island Sound.
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Sorry to hear your news.

I am in a similar state, with metastatic (urinary) bladder cancer. I am just completing my third chemotherapy cycle (of six planned) with cisplatin and gemzar (which is what I think they also use for your cancer), and am finding it less unpleasant than expected. I do take the anti-nausea meds faithfully; playing the stoic ended up being really unpleasant.

Progress is unpredictable. A scan last week showed that all my tumors had reduced in size. The doctor had ordered the scan because he feared things might have gotten worse, so it felt as if I was beating the system at least a bit.

Try not to disappear. I checked acor.org and didn’t find any gallbladder-specific forums or mail lists (but their server is chronically down). The www.cancer.net site has basic information, but it is helpful to trade experiences with others — even those with only somewhat similar cancers. The chemo “pod” rooms can be a comfort (you may be spending whole days there; at least that’s how it works for me). I find oncology nurses to be amazing fonts of useful information and good practical comfort.

Let me know if I can help at all. I hope your husband finds comfort.

   
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